I really dislike these weekly appointments - not that I’d like the appointments any better if it was less frequent. I think what I’m trying to say is that coming weekly doesn’t give me a chance to feel “normal”. When I was coming to the hospital every 3 or 4 weeks it was easier to “forget” I was sick. I’d go to my appointment and after resting for 3-4 days, I could then go about my routines/activities for at least a couple of weeks without too much difficulty.
When my appointments were 3 weeks a part, I did what most moms with 3 young children would do: plan meals, go shopping, cook & clean. I would take my kids to school & walk home with them. I would go shopping with them, go out for a movie, a special meal or treat once-in-awhile. I would go to their basketball games or track meets. Occasionally I would even meet up with my own friends for lunch & we’d sit and chat for 2-3 hours.
It’s difficult to do all that now. A week goes by so quickly & I barely have a chance to get my energy back before I start all over - waiting for my turn again.
Y.C.
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